Книга: Кого спасают первым? Медицинские и этические дилеммы: как решить их по совести и по закону
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Источники

Размышление № 1
Anderson, Kermyt G. “How Well Does Paternity Confidence Match Actual Paternity? Evidence from Worldwide Nonpaternity Rates.” Current Anthropology 47, no. 3 (June 2006).
Lerner, Barron H. “Cases; When a Doctor Stumbles on a Family Secret.” New York Times, September 16, 2003.

 

Размышление № 2
Faden, Ruth R., Tom L. Beauchamp, and Nancy M. P. King. A History and Theory of Informed Consent. New York: Oxford University Press, 1986.
Mariner, Wendy K., and George J. Annas. “Informed Consent and the First Amendment,” New England Journal of Medicine 372, no. 14 (April 2, 2015): 1285–87.
Rothman, D. J. “The Shame of Medical Research,” New York Review of Books, March 8, 2001.

 

Размышление № 3
Appelbaum, Paul S., and Alan Meisel. “Therapists’ Obligations to Report Their Patients’ Criminal Acts,” Bulletin of the American Academy of Psychiatry and the Law 14, no.3 (February 1986): 221–30.
Goldman, Marcus J., and Thomas G. Gutheil. “The Misperceived Duty to Report Patients’ Past Crimes.” Bulletin of the American Academy of Psychiatry and the Law 22, no. 3 (September 1994): 407–10.
Jaffee v. Redmond, 518 U.S. 1 (1996).
Tarasoff v. Regents of the University of California, 17 Cal. 3d 425 (1976).

 

Размышление № 4
Accordino, Robert, Nicholas Kopple-Perry, Nada Gligorov, and Stephen Krieger. “The Medical Record as Legal Document: When Can the Patient Dictate the Content?” Clinical Ethics 9, no. 1 (January 7, 2014): 53–56.
Golodetz, A., J. Ruess, and R. L. Milhous. “The Right to Know: Giving the Patient His Medical Record.” Archives of Physical Medicine and Rehabilitation 57, no. 2 (February 1976): 78–81.
Steiner, P. “Patient Access to the Medical Record: A Study of Physician Attitudes.” Medical Record News 49, no. 4 (August 1978): 77–78, 80–81.

 

Размышление № 5
Altman, Lawrence K., and Todd S. Purdum. “In J.F.K. File, Hidden Illness, Pain and Pills.” New York Times, November 17, 2002.
Appel, Jacob M. “History’s DNA.” Chicago Tribune, August 21, 2008.
Brown, David. “Is Lincoln Earliest Recorded Case of Rare Disease?” Washington Post, November 26, 2007.
Davidson, Jonathan, Kathryn Connor, and Marvin S. Swartz. “Mental Illness in U.S. Presidents Between 1776 and 1974: A Review of Biographical Sources.” Journal of Nervous and Mental Disease 194, no. 1 (January 2006): 47–51.
Ferrell, R. H. Ill-Advised: Presidential Health and Public Trust, 53–150. Columbia, MO: University of Missouri Press, 1996.
Gugliotta, Guy. “DNA May Reveal Who Can Claim Columbus.” Washington Post, May 15, 2006.
Hazelgrove, William. Madam President: The Secret Presidency of Edith Wilson. Washington, DC: Regnery, 2016.
Sotos, John G. The Physical Lincoln Complete. Mt. Vernon, VA: Mt. Vernon Book Systems, 2008.
Watson, Robert P., and Dale Berger. “Reconsidering Ike’s Health and Legacy: A Surprising Lesson in Duty at the Little White House Residential Retreat.” Eisenhower Institute.

 

Размышление № 6
Payton v. Weaver, Cal. Ct. App., 182 Cal. Rptr. 225 (1982).
Sack, Kevin. “Hospital Falters as Refuge for Illegal Immigrants.” New York Times, November 20, 2009.

 

Размышление № 7
English, Peter C., and Herman Grossman. “Radiology and the History of Child Abuse.” Pediatric Annals 12, no. 12 (December 1983): 870–74.
Kempe, C. Henry, Frederic N. Silverman, Brandt F. Steele, William Droegemueller, and Henry K. Silver. “The Battered-Child Syndrome.” JAMA 181, no. 1 (1962): 17–24.
Knight, Bernard. “The History of Child Abuse.” Forensic Science International 30, no. 2–3 (February – March 1986): 135–41.
Kotz, Deborah. “When Does Physical Discipline Become Child Abuse?” Boston Globe, September 17, 2014.

 

Размышление № 8
Appel Jacob M. “May Physicians Date Their Patients’ Relatives? Rethinking Sexual Misconduct & Disclosure after Long v. Ostroff.” Medicine and Health Rhode Island 87, no. 5 (May 2004):159–61.
Chesler, Phyllis. “The Sensuous Psychiatrists.” New York, June 19, 1972.
Freeman, Lucy, and Julie Roy. Betrayal: The True Story of the First Woman to Successfully Sue Her Psychiatrist for Using Sex in the Guise of Therapy. New York: Stein and Day, 1976.
Gartrell, N., J. Herman, S. Olarte, M. Feldstein, and R. Localio. “Psychiatrist-Patient Sexual Contact: Results of a National Survey. I: Prevalence.” American Journal of Psychiatry 143, no. 9 (September 1986): 1126–31.

 

Размышление № 9
Altman, Lawrence K. “When a Murderer Wants to Practice Medicine.” New York Times, January 29, 2008.
Appel, Jacob M. “Sweden Asks: Should Convicted Murderers Practice Medicine?” Cambridge Quarterly of Healthcare Ethics 19, no. 4 (October 2010): 559–62.
Kmietovicz, Zosia. “R.E.S.P.E.C.T. – Why Doctors Are Still Getting Enough of It.” BMJ 324, no. 7328 (January 5, 2002): 11.
Rakatansky, Herbert. “Criminal Convictions and Medical Licensure.” AMA Journal of Ethics 13, no. 10 (October 2011): 712–17.

 

Размышление № 10
Beck, Julie. “ ‘Do No Harm’: When Doctors Torture.” Atlantic, December 2014.
Jesper, S. “Doctors’ Involvement in Torture.” Torture 18, no. 3 (2008):161–75.
Singh, Jerome Amir. “American Physicians and Dual Loyalty Obligations in the ‘War on Terror.’ ” BMC Medical Ethics 4, no. 1 (August 1, 2003): E4.

 

Размышление № 11
Creswell, Julie, and Jessica Silver-Greenberg. “Dimon’s Cancer and the Fine Line in Revealing Illness of a C.E.O.” New York Times, July 2, 2014.
Horwich, Allan. “When the Corporate Luminary Becomes Seriously Ill: When Is a Corporation Obligated to Disclose That Illness and Should the Securities and Exchange Commission Adopt a Rule Requiring Disclosure?” New York University Journal of Law and Business 5, no. 2 (2009).
Parloff, Roger. “Why the SEC Is Probing Steve Jobs: Behind the Investigation into the Timing of Disclosure of the Apple’s Chief’s Health Problems.” Fortune, January 22, 2009.

 

Размышление № 12
Ojanuga, D. “The Medical Ethics of the ‘Father of Gynaecology,’ Dr. J. Marion Sims.” Journal of Medical Ethics 19, no. 1 (March 1993): 28–31.
Perry, Susan. “Nazi Link Isn’t the Only Reason to Abandon Eponymous Medical Names.” Minnesota Post, May 19, 2011.
Washington, Harriet A. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present. New York: Anchor, 2008.

 

Размышление № 13
Costandi, Mo. “The Science and Ethics of Voluntary Amputation.” Guardian, May 30, 2012.
Elliott, Carl. “A New Way to Be Mad.” Atlantic, December 2000.
Kloster, Ulla. “I Live like a Disabled Person Even Though I’m Physically Healthy…” Mail on Sunday, July 16, 2013.

 

Размышление № 14
Allen, David B., Michael Kappy, Douglas Diekema, and Norman Fost. “Growth-Attenuation Therapy: Principles for Practice.” Pediatrics 123, no. 6 (June 2009): 1556–61.
Burkholder, Amy. “Disabled Girl’s Parents Defend Growth-Stunting Treatment.” CNN.com, March 12, 2008.
Davies, Caroline. “Ashley the Pillow Angel: Love or Madness?” Telegraph, January 5, 2007.
Gibbs, Nancy. “Pillow Angel Ethics.” Time, January 7, 2007.
McDonald, Anne. “The Other Story from a ‘Pillow Angel.’ ” SeattlePI.com, June 16, 2007.
Ostrom, Carol. “Child’s Hysterectomy Illegal, Hospital Agrees.” Seattle Times, May 9, 2007.
Pilkington, Ed. “The Ashley Treatment: ‘Her Life Is As Good As We Can Possibly Make It.’ ” Guardian, March 15, 2012.

 

Размышление № 15
Corbett, Sara. “A Cutting Tradition.” New York Times Magazine, January 20, 2008
Westcott, Lucy. “Female Genital Mutilation on the Rise in the U.S.” Newsweek, February 6, 2015.

 

Размышление № 16
Kowalczyk, Liz. “Donor’s Death Shatters Family, Stuns Surgeons.” Boston Globe, February 2, 2014.
Miller, C. M., M. L. Smith, and Uso T. Diago. “Living Donor Liver Transplantation: Ethical Considerations.” Mount Sinai Journal of Medicine 79, no. 2 (March – April 2012): 214–22.

 

Размышление № 17
“Anemia Victim McFall Dies of Hemorrhage.” Michigan Daily, August 11, 1978.
McFall v. Shimp, 10 Pa. D. & C. 3d 90 (1978).
Wilkerson, Isabel. “In Marrow Donor Lawsuit, Altruism Collides With Right to Protect Child.” New York Times, July 30, 1990.

 

Размышление № 18
Flannery, Mary. “Stage of Illness Decides Priority But Some Docs Say There’s Favoritism.” Daily News, June 9, 1995.
Grady, Denise, and Barry Meier. “A Transplant That Is Raising Many Questions.” New York Times, June 23, 2009.
Munson, Ronald. Raising the Dead: Organ Transplants, Ethics, and Society. New York: Oxford University Press, 2002.

 

Размышление № 19
Appel, Jacob M., and Mark D. Fox. “Organ Solicitation on the Internet: Every Man for Himself?” Hastings Center Report 35, no. 3 (May – June 2005): 14.
Caplan, Arthur, Sheldon Zink, and Stacey Wertlieb. “Jumping to the Front of the Line for an Organ Transplant Is Unfair.” Chicago Tribune, September 1, 2004.
Grantham, Dulcinea A. “Transforming Transplantation: The Effect of the Health and Human Services Final Rule on the Organ Allocation System.” University of San Francscio Law Review 35 (Summer 2001): 751–52.
Goldberg, Aviva. “Advertising for Organs.” AMA Journal of Ethics 7, no. 9 (September 2005).: 619–24.
Roen, Terry O. “ ‘Kindred Spirit’ Donates a Kidney.” Orlando Sentinel, August 13, 2005.

 

Размышление № 20
Appel, Jacob M. “Wanted Dead or Alive? Kidney Transplantation in Inmates Awaiting Execution.” Journal of Clinical Ethics 16, no. 1 (Spring 2005): 58–60.
Lin, Shu S., Lauren Rich, Jay D. Pal, and Robert M. Sade. “Prisoners on Death Row Should Be Accepted as Organ Donors.” Annals of Thoracic Surgery 93, no. 6 (June 2012): 1773–79.
Longo, Christian. “Giving Life after Death Row.” New York Times, March 5, 2011.

 

Размышление № 21
Armstrong, Scott. “ ‘Baby Fae’ Case Raises Tough Issues.” Christian Science Monitor, November 6, 1984.
Cooper, David K. C. “A Brief History of Cross-Species Organ Transplantation.” Proceedings of Baylor University Medical Center 25, no. 1 (January 2012): 49–57.
Hoke, Franklin. “Undaunted By Death of First Baboon Liver Recipient, Interdisciplinary Transplant Team Looks to the Future.” The Scientist, September 28, 1992.
Krauthammer, Charles. “Essay: The Using of Baby Fae.” Time, December 3, 1984.

 

Размышление № 22
Caplan, Arthur. “Doctor Seeking to Perform Head Transplant Is Out of His Mind.” Forbes, February 26, 2015.
McKie, Robin, and Nick Paton Walsh. “Trickster Has Transplant Hand Cut Off.” Guardian, February 3, 2001.
Novak, Walter. “The Frankenstein Factor: Cleveland Brain Surgeon Robert J. White Has a Head for Transplanting.” CleveScene.com, December 9, 1999.
Sample, Ian. “First Full Body Transplant Is Two Years Away, Surgeon Claims.” Guardian, February 25, 2015.

 

Размышление № 23
Gavin, Gabriel C. S. “Should We Be Castrating Sex Offenders?” Psychology Today, October 6, 2014.
Rondeaux, Candace. “Can Castration Be a Solution for Sex Offenders?” Washington Post, July 5, 2006.
Sealey, Geraldine. “Some Sex Offenders Opt for Castration.” ABCNews.com, March 2, 2001.
Wassersug, R. J., S. A. Zelenietz, and G. F. Squire. “New Age Eunuchs: Motivation and Rationale for Voluntary Castration.” Archives of Sexual Behavior 33, no. 5 (October 2004): 433–42.
Weinberger, Linda E., Shoba Sreenivasan, Thomas Garrick, and Hadley Osran. “The Impact of Surgical Castration on Sexual Recidivism Risk among Sexually Violent Predatory Offenders.” Journal of the American Academy of Psychiatry and the Law 33, no. 1 (2005): 16–36.

 

Размышление № 24
Appel, Jacob M. “In Defense of Tongue Splitting.” Journal of Clinical Ethics 16, no. 3 (Fall 2005): 236–38.
Kennett, Heather. “Doctors Issue Warning on Body Modifications.” Sunday Mail, July 2, 2011.
Patterson, J. “Tongue Splitting, a Bizarre Form of Body Piercing, Soon Will Be Illegal in Illinois.” Daily Herald, August 7, 2003.

 

Размышление № 25
Arnold, Wayne, and Denise Grady. “Twins Die Trying to Live Two Lives.” New York Times, July 9, 2003.
Pearn, John. “Bioethical Issues in Caring for Conjoined Twins and Their Parents.” Lancet 357, no. 9272 (June 16, 2001): 1968–71.

 

Размышление № 26
Belkin, Lisa. “The Made-to-Order Savior.” New York Times Magazine, July 1, 2001.
Levin, Angela. “I Know I Was Born to Save Charlie instead of Being Born Just for Me: Incredible Story of the Saviour Sibling Who Sparked an Ethical Furore.” Daily Mail, May 21, 2011.
Sheldon S., and S. Wilkinson. “Should Selecting Saviour Siblings Be Banned?” Journal of Medical Ethics 30, no. 6 (2004): 533–37.
Spriggs, M., and J. Savulescu. “ ‘Saviour Siblings.’ ” Journal of Medical Ethics 28, no. 5 (October 2002): 289.
Verlinsky, Yury, S. Rechitisky, W. Schoolcraft, C. Strom, and A. Kulley. “Preimplantation Diagnosis for Fanconi Anemia Combined with HLA Matching.” JAMA 285, no. 24 (June 27, 2001): 3130–33.

 

Размышление № 27
Lawson, Dominic. “Of Course a Deaf Couple Want a Deaf Child.” Independent, March 11, 2008.
Porter, Gerard, and Malcolm K. Smith. “Preventing the Selection of ‘Deaf Embryos’ under the Human Fertilisation and Embryology Act 2008: Problematizing Disability?” New Genetics and Society 32, no. 2 (2013).
Starr, Sandy. “Should We Stamp Out ‘Designer Deafness’?” Spiked, March 31, 2008.

 

Размышление № 28
Forster, Heidi. “Law and Ethics Meet: When Couples Fight Over Their Frozen Embryos.” Journal of Andrology 21, no. 4 (July – August 2000): 512–14.
Loeb, Nick. “Sofía Vergara’s Ex-Fiancé: Our Frozen Embryos Have a Right to Live.” New York Times, April 29, 2015.
Young, Natalie K. “Frozen Embryos: New Technology Meets Family Law.” Golden Gate University Law Review 21, no. 3 (January 1991).

 

Размышление № 29
Marrus, Ellen. (2002). “Crack Babies and the Constitution: Ruminations about Addicted Pregnant Women after Ferguson v. City of Charleston.” Villanova Law Review 47, no. 2: 299–340.
Rhode, Deborah L. “The Terrible War on Pregnant Drug Users.” New Republic, July 17, 2014.
Ronan, Alex. “Here’s What Happens When Pregnant Women Lose Their Rights.” New York, April 2, 2015.

 

Размышление № 30
Bower, Hedy R. “How Far Can a State Go to Protect a Fetus? The Rebecca Comeau Story and the Case for Requiring Massachusetts to Follow the U.S. Constitution.” Golden Gate University Law Review 31, no. 2 (2001).
Cherry, April L. “The Detention, Confinement, and Incarceration of Pregnant Women for the Benefit of Fetal Health.” Columbia Journal of Gender & Law 16, no. 147 (2007).
Nicolosi, Michele. “Forced Prenatal Care.” Salon, September 15, 2000.

 

Размышление № 31
Belluck, Pam. “The Right to Be a Father (or Not).” New York Times, November 6, 2005.
Cohen, I. Glenn. “The Constitution and the Rights Not to Procreate.” Stanford Law Review 60, no. 4 (April 2010): 1135.
McCulley, Melanie G. “The Male Abortion: The Putative Father’s Right to Terminate His Interests in and Obligations to the Unborn Child.” Journal of Law and Policy 7, no. 1 (1988) 1–55.
Planned Parenthood of Southeastern Pennsylvania v. Casey, 505 U.S. 833 (1992).
Young, Cathy. “A Man’s Right to Choose.” Salon, October 19, 2000.

 

Размышление № 32
Hartocollis, Anemona. “Mother Accuses Doctors of Forcing a C-Section and Files Suit.” New York Times, May 16, 2014.
Levy, Daniel R. “The Maternal-Fetal Conflict: The Right of a Woman to Refuse a Cesarean Section versus the State’s Interest in Saving the Life of the Fetus.” West Virginia Law Review 108, no. 97 (2005–2006).
Lindgren, K. “Maternal-Fetal Conflict: Court-Ordered Cesarean Section.” Journal of Obstetric, Gynecologic, and Neonatal Nursing 25, no. 8 (October 1996): 653–56.
“Safe Prevention of the Primary Cesarean Delivery.” American Congress of Obstetricians and Gynecologists and the Society for Maternal-Fetal Medicine, March 2014.

 

Размышление № 33
Cohen, Elizabeth. “Surrogate Offered $10,000 to Abort Baby.” CNN.com, March 6, 2013.
Bains, Inderdeep. “ ‘I Don’t Want a Dribbling Cabbage for a Daughter’: What Mother Told Her Surrogate Before Rejecting Disabled Baby Girl.” Daily Mail, August 26, 2014.

 

Размышление № 34
Buck v. Bell, 274 U.S. 200 (1927).
Denekens, Joke P. M., Herman Nys, and Hugo Stuer. “Sterilisation of Incompetent Mentally Handicapped Persons: A Model for Decision Making.” Journal of Medical Ethics 25, no. 3 (June 1999): 237–41.
Gould, Stephen Jay. “Carrie Buck’s Daughter.” Natural History, July 1984.
Paul, Diane B. Controlling Human Heredity: 1865 to the Present. Atlantic Highlands, NJ: Humanities Press, 1995.

 

Размышление № 35
Brooks, Robert. “ ‘Asia’s Missing Women’ as a Problem in Applied Evolutionary Psychology?” Evolutionary Psychology 10, no. 5 (2012): 910–25.
Cox, David. “Hong Kong’s Troubling Shortage of Men.” Atlantic, December 2, 2013.
Hudson, Valerie M., and Andrea M. den Boer. Bare Branches: The Security Implications of Asia’s Surplus Male Population. Cambridge, MA: MIT Press, 2015.
Oster, Emily. “Hepatitis B and the Case of the Missing Women.” Journal of Political Economy 113, no. 6 (December 2005): 1163–1216.
Sen, Amartya. “More Than 100 Million Women Are Missing,” New York Review of Books, December 20, 1990.
Sidhu, Jasmeet. “How to Buy a Daughter.” Slate, September 14, 2012.

 

Размышление № 36
Appel, Jacob M. “Physicians, ‘Wrongful Life’ and the Constitution.” Medicine and Health Rhode Island 87, no. 2 (2004): 55–58.
Hensel, Wendy Fritzen. “The Disabling Impact of Wrongful Birth and Wrongful Life Actions.” Harvard Civil Rights-Civil Liberties Law Review 40 (2005): 141.
Latson, Jennifer. “How an Abortion-Clinic Shooting Led to a ‘Wrongful Life’ Lawsuit.” Time, December 30, 2014.

 

Размышление № 37
Caulfield, Timothy. “Human Cloning Laws, Human Dignity and the Poverty of the Policy Making Dialogue.” BMC Medical Ethics 4, no. 3 (2003).
Church, George M. Regenesis: How Synthetic Biology Will Reinvent Nature and Ourselves. New York: Basic Books, 2014.
Kass, Leon R. “The Wisdom of Repugnance.” New Republic, June 2, 1997.
–. “Preventing a Brave New World: Why We Should Ban Human Cloning Now.” New Republic, May 21, 2001.
Savulescu, Julian. “How Will History Judge Cloning?” Times Higher Education, May 6, 2005.
Watson, James. “Moving toward a Clonal Man: Is This What We Want?” Atlantic Monthly, May 1971.

 

Размышление № 38
Hughes, Virginia. “Return of the Neanderthals: Should Scientists Seek to Clone Our Ancient Hominid Cousins?” National Geographic News, March 6, 2013.
“Interview with George Church: Can Neanderthals Be Brought Back from the Dead?” Spiegel Online, January 18, 2013.
Smith, Rebecca. “ ‘I Can Create Neanderthal Baby, I Just Need Willing Woman.’ ” Telegraph, January 20, 2013.

 

Размышление № 39
Curry, Tyler. “Texas Dads Denied Surrogacy Services Because of Marriage Discrimination.” Advocate.com, January 14, 2015.
Egelko, Bob. “Doctors Can’t Use Bias to Deny Gays Treatment.” San Francisco Gate, August 19, 2008.
North Coast Women’s Care Medical Group vs. Superior Court, 44 Cal. 4th 1145 (2008).

 

Размышление № 40
Hackler, Chris. “Ethical, Legal and Policy Issues in Management of Fetal Alcohol Spectrum Disorder.” Journal of the Arkansas Medical Society 108, no. 6 (November 2011): 123–24.
Seamark, Michael. “The American Woman Who Wants to ‘Bribe’ UK Heroin Users with £200 to Have Vasectomies.” Daily Mail, October 19, 2010.
Vega, Cecilia M. “Sterilization Offer to Addicts Reopens Ethics Issue.” New York Times, January 6, 2003.

 

Размышление № 41
Finigan, Michael W., Shannon M. Carey, and Anton Cox. Impact of a Mature Drug Court over 10 Years of Operation: Recidivism and Costs, July 2007.
Gentilello, L. M., F. P. Rivara, D. M. Donovan, G. J. Jurkovich, E. Daranciang, C. W. Dunn, A. Villaveces, M. Copass, and R. R. Ries. “Alcohol Interventions in a Trauma Center as a Means of Reducing the Risk of Injury Recurrence.” Annals of Surgery 230, no. 4 (October 1999): 473.
Sutton, Malcolm. “NT Move to Mandatory Alcohol Rehabilitation Sparks Controversy.” Guardian, June 30, 2013.
Szalavitz, Maia. “How America Overdosed on Drug Courts.” Pacific Standard, May 18, 2015.

 

Размышление № 42
“Andrew Speaker, Quarantined for Tuberculosis in 2007, Sues CDC for Invasion of Privacy.” Associated Press, April 30, 2009.
Leavitt, Judith Walzer. Typhoid Mary: Captive to the Public’s Health. Boston: Beacon Press, 1996.
Wynia, M. K. “Ethics and Public Health Emergencies: Restrictions on Liberty.” American Journal of Bioethics 7, no. 2 (February 2007): 1–5.

 

Размышление № 43
Halbfinger, David M. “Police Dragnets for DNA Tests Draw Criticism.” New York Times, January 4, 2003.
Povoledo, Elisabetta. “In Search for Killer, DNA Sweep Exposes Intimate Family Secrets in Italy.” New York Times, July 26, 2014.

 

Размышление № 44
Carmichael, Mary. “Newborn Screening: A Spot of Trouble.” Nature 475 (July 13, 2011): 156–58.
Gabler, Ellen. “Privacy Issues Stall Newborn Screening Bill in U.S. Senate.” Journal Sentinel, November 29, 2014.
Greenfieldboyce, Nell. “Screening Newborns for Disease Can Leave Families in Limbo.” Health News Florida, December 23, 2013.
Hazzazi, Hussain, and Ayman Al-Saidalani. “165,000 Engagements End Due to ‘Genetic Incompatibilities.’ ” Saudi Gazette, March 24, 2015.

 

Размышление № 45
Appel, Jacob M. “Rethinking Force-Feeding: Legal and Ethical Aspects of Physician Participation in the Termination of Hunger Strikes in American Prisons.” Public Affairs Quarterly 26, no. 4 (October 2012): 313–35.
Greenberg, Joel K. “Hunger Striking Prisoners: The Constitutionality of Force-Feeding.” Fordham Law Review 51, no. 4 (March 1983): 747–70.
Neumann, Ann. “Guantánamo Is Not an Anomaly – Prisoners in the US Are Force-Fed Every Day.” Common Dreams, May 6, 2013.

 

Размышление № 46
“Doctor ‘Fires’ Patients Who Refuse to Vaccinate Their Kids.” Associated Press, January 30, 2015.
Dominus, Susan. “The Crash and Burn of an Autism Guru.” New York Times Magazine, April 20, 2011.
Mejia, Brittny. “Doctors Turning Away Unvaccinated Children.” Los Angeles Times, February 11, 2015.

 

Размышление № 47
Cain, John. “Nonconsensual Surgery: The Unkindest Cut of All.” Notre Dame Law Review 53, no. 2 (1977): 291.
Gitles, Jay A. “Reasonableness of Surgical Intrusions – Fourth Amendment: Winston v. Lee, 105 S. Ct. 1611.” Journal of Criminal Law and Criminology 76, no. 4 (1985): 972.
Minton, Michael B. “Criminal Procedure – Surgical Removal of Evidence – United States v. Crowder.” Missouri Law Review 43 (1978).
Winston v. Lee, 470 U.S. 753 (1985).

 

Размышление № 48
Angell, Marcia. “The Ethics of Clinical Research in the Third World.” New England Journal of Medicine 337, no. 12 (September 18, 1997): 847–49.
Lurie, Peter, and Sidney M. Wolfe. “Unethical Trials of Interventions to Reduce Perinatal Transmission of the Human Immunodeficiency Virus in Developing Countries.” New England Journal of Medicine 337, no. 12 (September 18, 1997): 853–56.
Rothman, David J. “The Shame of Medical Research.” New York Review of Books, November 30, 2000.

 

Размышление № 49
Appelbaum, P. S., L. H. Roth, and C. Lidz. “The Therapeutic Misconception: Informed Consent in Psychiatric Research.” International Journal of Law and Psychiatry 5, no. 3–4 (1982): 319–29.
Institutional Review Board Guidebook, US Department of Health and Human Services, 1993.
Kolata, Gina. “What to Tell the Patients after a Trial Goes Awry.” New York Times, August 23, 2010.
Lidz, C. W., and P. S. Appelbaum. “The Therapeutic Misconception: Problems and Solutions.” Medical Care 40, no. 9 Suppl (September 2002): V55–63.
Rosenthal, Elisabeth. “When Drug Trials Go Horribly Wrong.” New York Times, April 7, 2006.
Woods, Simon, Lynn E. Hagger, and Pauline Mccormack. “Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research.” Health Care Analysis 22, no. 1 (February 2012).

 

Размышление № 50
Fels, Anna. “Should We All Take a Bit of Lithium?” New York Times, September 13, 2014.
Kapusta, N. D., N. Mossaheb, E. Etzersdorfer, G. Hlavin, K. Thau, M. Willeit, N. Praschak-Rieder, G. Sonneck, and K. Leithner-Dziubas. “Lithium in Drinking Water and Suicide Mortality.” British Journal of Psychiatry 198, no. 5 (May 2011): 346–50.
Schrauzer, G. N., and K. P. Shrestha. “Lithium in Drinking Water and the Incidences of Crimes, Suicides, and Arrests Related to Drug Addictions.” Biological Trace Element Research 25, no. 2 (May 1990): 105–13.

 

Размышление № 51
Bradshaw v. Daniel 854 S.W.2d 865 (Tenn. 1993).
King, Michelle R. “Physician Duty to Warn a Patient’s Offspring of Hereditary Genetic Defects: Balancing the Patient’s Right to Confidentiality Against the Family Member’s Right to Know – Can or Should Tarasoff Apply?” Quinnipiac Health Law Journal 4, no. 1 (2000): 1–38.
Schleiter, Kristin E. “A Physician’s Duty to Warn Third Parties of Hereditary Risk.” AMA Journal of Ethics 11, no. 9 (September 2009): 697–700.
Sudell, Andrea. “To Tell or Not to Tell: The Scope of Physician-Patient Confidentiality When Relatives Are At Risk of Genetic Disease.” Journal of Contemporary Health Law & Policy 18, no. 1 (Winter 2001): 273.

 

Размышление № 52
Abbott, Alison. “Regulations Proposed for Animal – Human Chimaeras.” Nature 475 (July 2011).
Appel, Jacob M. “The Monster’s Laws: A Legal History of Chimera Research.” GeneWatch 19, no. 2 (March – April 2006): 12–16.
Greely, Henry T., Mildred K. Cho, Linda F. Hogle, and Debra M. Satz. “Thinking About the Human Neuron Mouse.” American Journal of Bioethics 7, no. 5 (May 2007): 27–40.
Hilts, Philip J. “The Business of Manipulating Life.” Washington Post, April 21, 1987.
Karpowicz, P., C. B. Cohen, and D. van der Kooy. “Developing Human-Nonhuman Chimeras in Human Stem Cell Research: Ethical Issues and Boundaries.” Kennedy Institute of Ethics Journal 15, no. 2 (June 2005): 107–34.

 

Размышление № 53
“Bahrain’s Doctors: Harsh Treatment.” Economist, January 28, 2014.
Brinkley, Joel. “Dictators Spurn Their Nations’ Health Care.” San Francisco Gate, September 1, 2012.
Bueno de Mesquita, Bruce, and Alastair Smith. “In Sickness and in Health: Why Leaders Keep Their Illnesses Secret.” Foreign Policy, September 18, 2012.
Owen, David. “Diseased, Demented, Depressed: Serious Illness in Heads of State.” QJM 96, no. 5 (May 1, 2003): 325–36.

 

Размышление № 54
Green, Robert C., Denise Lautenbach, and Amy L. McGuire. “GINA, Genetic Discrimination, and Genomic Medicine.” New England Journal of Medicine 372 (January 29, 2015): 397–99.
Sullivan, Andrew. “Promotion of the Fittest.” New York Times, July 23, 2000.

 

Размышление № 55
Chen, Frederick M., George E. Fryer Jr., Robert L. Phillips, Elisabeth Wilson, and Donald E. Pathman. “Patients’ Beliefs about Racism, Preferences for Physician Race, and Satisfaction with Care.” Annals of Family Medicine 3, no. 2 (2005): 138–43.
Johnson, Amy M., Peter F. Schnatz, Anita M. Kelsey, and Christine M. Ohannessian. “Do Women Prefer Care from Female or Male Obstetrician-Gynecologists? A Study of Patient Gender Preference.” Journal of the American Osteopathic Association 105 (August 2005): 369–79.
Paul-Emile, Kimani. “Patient Racial Preferences and the Medical Culture of Accommodation.” UCLA Law Review 60 (2012).
Waseem, Muhammad, and Aaron K. Miller. “Patient Requests for a Male or Female Physician.” AMA Journal of Ethics 10, no. 7 (July 2008): 429–33.

 

Размышление № 56
McCabe, Mary S., William A. Wood, and Richard M. Goldberg. “When the Family Requests Withholding the Diagnosis: Who Owns the Truth?” Journal of Oncology Practice 6, no. 2 (March 2010): 94–96.
Oken, Donald. “What to Tell Cancer Patients: A Study of Medical Attitudes.” JAMA 175, no. 13 (1961): 1120–28.

 

Размышление № 57
Appelbaum, P. S., and T. Grisso. “Assessing Patients’ Capacities to Consent to Treatment.” New England Journal of Medicine 319, no. 25 (December 22, 1988): 1635–38.
Fraser, Caroline. “Suffering Children and the Christian Science Church.” Atlantic Monthly, April 1995.
Perry, Candace Lyn, Maria Isabel Lapid, and Jarrett W. Richardson. “Ethical Dilemmas with an Elderly Christian Scientist.” Annals of Long-Term Care 15, no. 3 (March 2007): 29–34.

 

Размышление № 58
Armour, Stephanie. “U.S. Recovers $3.3 Billion in Federal Health-Care Fraud.” Wall Street Journal, March 19, 2015.

 

Размышление № 59
Cohen, Steven B. “The Concentration of Health Care Expenditures and Related Expenses for Costly Medical Conditions, 2012.” Medical Expenditure Panel Survey, October 2014.
Gawande, Atul. “The Hot Spotters: Can We Lower Medical Costs by Giving the Neediest Patients Better Care?” New Yorker, January 24, 2011.
Winslow, Ron. “One Patient, 34 Days in the Hospital, $7,000 Syringes and a $5.2 Million Bill.” Wall Street Journal, August 2, 2001.

 

Размышление № 60
“Allocation of Ventilators in an Influenza Pandemic: Planning Document.” Draft for Public Comment, New York State, March 15, 2007.
Appel, Jacob M. “The Coming Ethical Crisis: Oxygen Rationing.” Huffington Post, July 28, 2009.
Dean, Cornelia. “Guidelines for Epidemics: Who Gets a Ventilator?” New York Times, March 25, 2008.

 

Размышление № 61
Berenson, Alex. “A Cancer Drug Shows Promise, at a Price That Many Can’t Pay.” New York Times, February 15, 2006.
Grewal, David Singh, and Amy Kapczynski. “Let India Make Cheap Drugs.” New York Times, December 11, 2014.
McNeil Jr., Donald G. “Selling Cheap ‘Generic’ Drugs, India’s Copycats Irk Industry.” New York Times, December 1, 2000.
Ornstein, Charles. “New Hepatitis C Drugs Are Costing Medicare Billions.” Washington Post, March 29, 2015.
Ram, Prabhu. “India’s New ‘TRIPs-Compliant’ Patent Regime: Between Drug Patents and the Right to Health.” Chicago-Kent Journal of Intellectual Property 5, no. 2 (2006).

 

Размышление № 62
Coker, Hillary Crosley. “Canadian Sperm Bank Finally Decides Race Mixing Is Okay.” Jezebel, July 29, 2014.
Goff, Keli. “The Real Problem with Sperm Banks.” Daily Beast, October 7, 2014.
Rodriguez, Meredith. “Lawsuit: Wrong Sperm Delivered to Lesbian Couple.” Chicago Tribune, October 1, 2014.
Sheridan, Michael. “World’s Biggest Sperm Bank, Cryos, Tells Redheads: We Don’t Want Your Semen.” Daily News, September 18, 2011.
“Sperm Bank Is For Whites Only – Spokane Effort Reportedly Funded by Tycoon.” Associated Press, August 6, 1996.

 

Размышление № 63
Casey, Liam. “North Bay Hospital to Offer Co-Ed Hospital Rooms.” Star, August 31, 2010.
Miner, John. “Shared Room Sparks Rage Outrage.” London Free Press, June 17, 2010.

 

Размышление № 64
Anderson, Elizabeth. “Nearly Half of Employers ‘Unlikely’ to Hire Overweight Workers.” Telegraph, April 8, 2015.
Cawley, John, and Chad Meyerhoefer. “The Medical Care Costs of Obesity: An Instrumental Variables Approach.” Journal of Health Economics 31, no. 1 (January 2012): 219–230.
Holt, Mytheos. “Texas Hospital Bans Overweight Employees.” Blaze, April 4, 2012.
Koch, Wendy. “Workplaces Ban Not Only Smoking, but Smokers Themselves.” USA Today, January 6, 2102.
Sulzberger, A. G. “Hospitals Shift Smoking Bans to Smoker Ban.” New York Times, February 10, 2011.

 

Размышление № 65
Appel, Jacob M., and Joseph H. Friedman. “Genetic Markers and the Majority’s Right Not to Know.” Movement Disorders 19, no. 1 (January 2004): 113–14.
Howe, Edmund G. “Ethical Issues in Diagnosing and Treating Alzheimer Disease.” Psychiatry 3, no. 5 (May 2006): 43–53.
Nyholt, Dale R., Chang-En Yu, and Peter M. Visscher. “On Jim Watson’s APOE Status: Genetic Information is Hard to Hide.” European Journal of Human Genetics 17, no. 2 (February 2009): 147–49.
Pinker, Steven. “My Genome, My Self.” New York Times Magazine, January 7, 2009.

 

Размышление № 66
Leonhardt, David. “Health Care Rationing Rhetoric Overlooks Reality.” New York Times, June 17, 2009.
Perry, Philip A., and Timothy Hotze. “Oregon’s Experiment with Prioritizing Public Health Care Services.” AMA Journal of Ethics 13, no. 3 (April 2011): 241–47.
Singer, Peter. “Why We Must Ration Health Care.” New York Times, July 15, 2009.
Thurow, Lester Carl. “Learning to Say No.” New England Journal of Medicine 311 (December 13, 1984): 1569–72.

 

Размышление № 67
Appel, Jacob M. “When the Boss Turns Pusher: A Proposal for Employee Protections in the Age of Cosmetic Neurology.” Journal of Medical Ethics 34, no. 8 (2008).
Cadwalladr, Carole. “Students Used to Take Drugs to Get High. Now They Take Them to Get Higher Grades.” Guardian, February 14, 2015.
Chatterjee, Anjan. “Cosmetic Neurology and Cosmetic Surgery: Parallels, Predictions, and Challenges.” Cambridge Quarterly of Healthcare Ethics 16, no. 2 (April 2007): 129–37.

 

Размышление № 68
Appelbaum, Paul S. “Law and Psychiatry: Psychiatric Advance Directives and the Treatment of Committed Patients.” Psychiatric Services 55, no. 7 (July 2004): 751–63.
Hargrave v. Vermont, 340 F. 3d 27 (2nd Cir. 2003).
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Zelle, Heather, Kathleen Kemp, and Richard J. Bonnie. “Advance Directives for Mental Health Care: Innovation in Law, Policy, and Practice.” Psychiatric Services 66, no. 1 (January 2015): 7–9.

 

Размышление № 69
Appel, Jacob M. “Health ‘Insurance’: A Criminal Enterprise.” Huffington Post, March 18, 2010.
Beiser, E. N. “The Emperor’s New Scrubs: Thoughts about Health Care Reform.” Rhode Island Medical Journal 77, no. 9 (September 1994): 304–6.
Williams, Geoff. “How Risky Hobbies Can Raise Your Insurance Rates.” US News & World Report, April 16, 2013.

 

Размышление № 70
Engber, Daniel. “Naughty Nursing Homes: Is It Time to Let the Elderly Have More Sex?” Slate, September 27, 2007.
Gray, Eliza. “Why Nursing Homes Need to Have Sex Policies.” Time, April 23, 2015.
Leys, Tony. “Husband Acquitted of Nursing Home Sex-Abuse Charge.” Des Moines Register, April 22, 2015.
Zernike, Kate. “Love in the Time of Dementia.” New York Times, November 18, 2007.

 

Размышление № 71
Appel, Jacob M. “Defining Death: When Physicians and Families Differ.” Journal of Medical Ethics 31, no. 11 (2005): 641–42.
Labbé-DeBose, Theola, David Brown, and Keith L. Alexander. “Jewish Law’s Meaning of Death Nears Court Fight.” Washington Post, November 7, 2008.

 

Размышление № 72
Holt, Jim. “Euthanasia for Babies?” New York Times Magazine, July 10, 2005.
Verhagen, A. A. E., and P. J. J. Sauer. “End-of-Life Decisions in Newborns: An Approach from the Netherlands.” Pediatrics 116, no. 3 (September 2005): 736–39.

 

Размышление № 73
Saunders, Laura. “Rich Cling to Life to Beat Tax Man.” Wall Street Journal, December 30, 2009.

 

Размышление № 74
Berg, Jessica Wilen. “Grave Secrets: Legal and Ethical Analysis of Postmortem Confidentiality.” Connecticut Law Review 34 (2001): 81.
Bongers, L. M. “Disclosure of Medical Data to Relatives after the Patient’s Death: Recent Legal Developments with Respect to Relatives’ Entitlements in the Netherlands.” European Journal of Health Law 18, no. 3 (May 2011): 255–75.
Choong, Kartina Aisha, Mifsud Bonnici, and Jeanne Pia. “Posthumous Medical Confidentiality: The Public Interest Conundrum.” European Journal of Comparative Law and Governance 1, no. 2 (2014): 106–19.

 

Размышление № 75
Appel, Jacob M. “A Duty to Kill? A Duty to Die? Rethinking the Euthanasia Controversy of 1906.” Bulletin of The History of Medicine 78, no. 3 (Fall 2004): 610–34.
Bailey, Ryan. “The Case of Dr. Anna Pou: Physician Liability in Emergency Situations.” AMA Journal of Ethics 12, no. 9 (September 2010): 726–30.
Drew, Christopher, and Sheila Dewan. “Louisiana Doctor Said to Have Faced Chaos.” New York Times, July 20, 2006.
Fink, Sheri. “The Deadly Choices at Memorial.” New York Times Magazine, August 25, 2009.
Schaffer, Amanda. “The Moral Dilemmas of Doctors during Disaster.” New Yorker, September 12, 2013.

 

Размышление № 76
Lerner, Barron H. “In a Wife’s Request at Her Husband’s Deathbed, Ethics Are an Issue.” New York Times, September 7, 2004.
Myers, Russell. “I’ll Give Birth to My Dead Daughter’s Baby: World First as Mum Uses Frozen Eggs for Own Grandchild.” Mirror, May 8, 2015.
Orr, R. D., and M. Siegler. “Is Posthumous Semen Retrieval Ethically Permissible?” Journal of Medical Ethics 28, no. 5 (October 2002): 299–302.

 

Размышление № 77
Belluck, Pam. “Even as Doctors Say Enough, Families Fight to Prolong Life.” New York Times, March 27, 2005.
Dzielak, Robert J. “Physicians Lose the Tug of War to Pull the Plug: The Debate about Continued Futile Medical Care.” John Marshall Law School Law Review 28, no. 3 (Spring 1995).
Larimer, Sarah. “Midwest Miracle: Woman Woke Up Hours Before She Was Going to Be Taken Off Life Support.” Washington Post, February 2, 2015.
Laytner, Ron. “Mrs Rip Van Winkle’s Love Story Finally Ends.” Jamaica Observer, November 23, 2003.

 

Размышление № 78
Eversley, Melanie. “Tenn. Funeral Home Allegedly Mixes Up Corpses.” USA Today, February 17, 2010.
Fried, Richard G., and Clifford Perlis. “Therapeutic Privilege: If, When, and How to Lie to Patients.” In Dermatoethics: Contemporary Ethics and Professionalism in Dermatology, 33–36. New York: Springer, 2011.
Griffith, Dorsey. “Baby’s Corpse Mistakenly Buried with Twins.” Sacramento Bee, May 24, 2006.
Lynn, Guy. “Exhumation after Wrong Bodies Buried in Hospital Mix-Up.” BBC News, July 4, 2011.
Richard, Claude, Yvette Lajeunesse, and Marie-Thérèse Lussier. “Therapeutic Privilege: Between the Ethics of Lying and the Practice of Truth.” Journal of Medical Ethics 36, no. 6 (June 2010): 353–57.

 

Размышление № 79
Davies, Madlen. “Builder Who Had All Four Limbs Amputated after ‘Flu’ Turned Out to Be a Flesh-Eating Bug Is Finally Able to Walk Again Thanks to Prosthetic Legs.” Daily Mail, April 20, 2015.
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O’Connor, C. M. “Statutory Surrogate Consent Provisions: A Review and Analysis.” Mental and Physical Disability Law Reporter 20 (1996): 128–38.
Wynn, Shana. “Decisions by Surrogates: An Overview of Surrogate Consent Laws in the United States.” Bifocal 36, no. 1 (September – October 2014): 10–14.

 


notes

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